In the media

Skyler & Ollie in the news

From BBC News to Good Morning Britain, Skyler and Ollie's story is helping more people learn about Hunter syndrome. Press play on any video below.

Event recap

Hoops for Hunter Syndrome

Highlights from the first Hoops for Hunter Syndrome in Chino, CA: a day of basketball, family fun, and fundraising for Hunter syndrome research. See the community that showed up for Skyler, Ollie, and every family facing MPS II.

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BBC News

Ollie's world-first gene therapy

The BBC followed Ollie for more than a year, from having his stem cells collected in Manchester to becoming the first child in the world to receive a new gene therapy for Hunter syndrome, and the progress that has amazed his doctors.

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FOX 11 Los Angeles

Dr. Raymond Wang and Ricky Chu on finding a cure

Ollie's doctor, Dr. Raymond Wang, joins his dad Ricky to talk about Hunter syndrome, the race to find a cure, and how Project Alive is funding the research that gives families like theirs hope.

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Good Morning Britain · Live

Ollie Chu on Good Morning Britain

Ollie and his family join Good Morning Britain live to share his story as the first child in the world to receive the gene therapy, and what it could mean for other children with Hunter syndrome.

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Videos shared by the Chu family.